"Normal".... Whats that supposed to mean?
Is it the setting on the washing machine?
Does it mean having 10 fingers and 10 toes?
Does it mean having 2 eyes that see?
How about 2 legs that walk?
"Normal"- for us is probably not the same "normal" for you...
Everyone has their cage of "normal"-
Is it the setting on the washing machine?
Does it mean having 10 fingers and 10 toes?
Does it mean having 2 eyes that see?
How about 2 legs that walk?
"Normal"- for us is probably not the same "normal" for you...
Everyone has their cage of "normal"-
Ours just happens to be a bit crazier on the inside. ;)
So when I refer to our "Normal"-
So when I refer to our "Normal"-
It was a day where all 5 kids were healthy,
without attachments.
A day where I pulled 7 plates out of the cup-board,
and set 7 around the table.
A night where I tucked my kids into bed-
A night where I tucked my kids into bed-
without life supporting machines.
An evening where bath time was safe
and enjoyed by all.
A trip to the store
that only required unloading 1 power-chair.
A drive to see my sister in Atlanta once a month,
with the occational trips to specialists or doctors.
That WAS our normal...
It was glorious-
It was glorious-
and I want it back.
Even though our "normal" was a little tough then...
Even though our "normal" was a little tough then...
I want it back!
I want the days back where I have 5 children
that can eat and enjoy food.
I want the days back where "unloading the kids" does
I want the days back where "unloading the kids" does
not take a full 10 minutes to complete.
I want the days back where SMA had not
progressed to where it has today.
I want it back.
oh my aching heart...
I want it back so bad.
But-
Its not mine to have....
It was mine to enjoy while it was here.
And mine to remember and reflect upon in the days ahead.
Because now we are facing a
"NEW NORMAL".
A day where my youngest can't go more than a couple of hours without being attached to a feeding pump and bag.
A day where 7 plates are no longer needed-
because my youngest has lost most of her swallow.A night where I tuck 2 of my kids into bed-
and hook them up to "life supporting" machines, to give their bodies a break.
An evening where bath time is eliminated-
because the "special shower chair" takes up 89% of the bath tub- making it safe to now wash my 2 children with special needs, but taking away 'bath time' for my other 3 children.
A trip to the store- or anywhere outside of the home,
now requires unloading 2 power-chairs
(that are not safe together) inside the family vehicle.
A drive to see my sister in Atlanta is now
multiple trips a month-
for Doctor appointments, surgeries and more consultations.
When friends ask "how we are doing?"...
I simply say, "Adjusting to our 'New Normal'".
Its such a loaded answer-
Its such a loaded answer-
and
Its not an easy task.
But I will cherish it for as long as I can.
Because- "adjusting" is all we can do.
So, we will continue to "adjust"- because
There are more storms brewing...
There are more storms brewing...
On May 9th- my Youngest will be admitted to the hospital and on May 10th she will have surgery to place a G-tube.
We will be in the hospital for 3-5 days-
depending on how she does.
She needs this surgery so we can best manage her
feedings and care.
The "phone call" Today-
I received information that the girls now need to go see an Orthopedic Doctor-
Their spines are curving.
The disease is progressing.
They both have slight curves in their spine-
with my youngest being more severe.
She is only 3.
My oldest is only 8.
"Adjusting to the New Normal" for them-
is just another day to be
SHINING,
JOYOUS
and
LOVING.
So- no matter where you are- or who you are-
Embrace your "normal"- and shine your light to others.
Thats what the Voss girls would tell you to do... ;)
Be richly BLESSED~
- Natosha -
*~* One BLESSED Mommie ~*~
- Natosha -
*~* One BLESSED Mommie ~*~
Ps. If you are looking for a "skin care gal"- I'd love to help with your skin care concerns! Not gonna lie- Rodan and Fields allows me to provide for my family- amongst the "New Normal" adjustments. It has been the "saving grace" these past couple of months- and with more appointments, trips to the doctor, therapy, and extra needs coming up in the near future- it will continue to bless our family and cover the needs that arise.
The skin results and transformations within
"my care" have been so rewarding.
Rodan + Fields has blessed our lives and the lives around me-
and I am excited to see where it is heading!
If you are curious about the business or products-
Now would be the opportune time to talk.
Lets get you the best skin of your life!
You only have one face to wear- so wear it well. ;)
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