Tuesday, April 26, 2016

The "New Normal".

"Normal".... Whats that supposed to mean?

Is it the setting on the washing machine?

Does it mean having 10 fingers and 10 toes?

Does it mean having 2 eyes that see?

How about 2 legs that walk?


 "Normal"- for us is probably not the same "normal" for you...

Everyone has their cage of "normal"- 
Ours just happens to be a bit crazier on the inside. ;)

So when I refer to our "Normal"-


 It was a day where all 5 kids were healthy, 
without attachments. 

A day where I pulled 7 plates out of the cup-board, 
and set 7 around the table.

A night where I tucked my kids into bed- 
without life supporting machines. 

An evening where bath time was safe 
and enjoyed by all. 

A trip to the store 
that only required unloading 1 power-chair. 

A drive to see my sister in Atlanta once a month, 
with the occational trips to specialists or doctors. 


That WAS our normal...


It was glorious- 

and I want it back.

Even though our "normal" was a little tough then... 

I want it back! 

I want the days back where I have 5 children
 that can eat and enjoy food.

I want the days back where "unloading the kids" does 
not take a full 10 minutes to complete. 

I want the days back where SMA had not 
progressed to where it has today. 

I want it back. 

oh my aching heart... 

I want it back so bad.

But- 

Its not mine to have.... 

It was mine to enjoy while it was here. 

And mine to remember and reflect upon in the days ahead. 

Because now we are facing a 

"NEW NORMAL". 

A day where my youngest can't go more than a couple of hours without being attached to a feeding pump and bag. 

A day where 7 plates are no longer needed- 
because my youngest has lost most of her swallow.A night where I tuck 2 of my kids into bed- 
and hook them up to "life supporting" machines, to give their bodies a break. 

An evening where bath time is eliminated- 
because the "special shower chair" takes up 89% of the bath tub- making it safe to now wash my 2 children with special needs, but taking away 'bath time' for my other 3 children. 

A trip to the store- or anywhere outside of the home, 
 now requires unloading 2 power-chairs 
(that are not safe together) inside the family vehicle. 

A drive to see my sister in Atlanta is now 
 multiple trips a month- 
for Doctor appointments, surgeries and more consultations. 

When friends ask "how we are doing?"... 

I simply say, "Adjusting to our 'New Normal'".

Its such a loaded answer-

and 

Its not an easy task. 

But I will cherish it for as long as I can. 

Because- "adjusting" is all we can do. 

So, we will continue to "adjust"- because

There are more storms brewing... 


On May 9th- my Youngest will be admitted to the hospital and on May 10th she will have surgery to place a G-tube. 


We will be in the hospital for 3-5 days- 
depending on how she does.

She needs this surgery so we can best manage her 
feedings and care. 


The "phone call" Today-


 I received information that the girls now need to go see an Orthopedic Doctor- 

Their spines are curving. 

The disease is progressing. 

They both have slight curves in their spine- 
with my youngest being more severe. 

She is only 3. 

My oldest is only 8. 


"Adjusting to the New Normal" for them- 
is just another day to be 

SHINING, 

JOYOUS

and 

LOVING. 


So- no matter where you are- or who you are- 

Embrace your "normal"- and shine your light to others. 

Thats what the Voss girls would tell you to do... ;) 



Be richly BLESSED~

- Natosha -
*~* One BLESSED Mommie ~*~



Ps. If you are looking for a "skin care gal"- I'd love to help with your skin care concerns! Not gonna lie- Rodan and Fields allows me to provide for my family- amongst the "New Normal" adjustments. It has been the "saving grace" these past couple of months- and with more appointments, trips to the doctor, therapy, and extra needs coming up in the near future- it will continue to bless our family and cover the needs that arise.

 The skin results and transformations within 

"my care" have been so rewarding.
Rodan + Fields has blessed our lives and the lives around me- 

and I am excited to see where it is heading!  
If you are curious about the business or products-
 Now would be the opportune time to talk.

Lets get you the best skin of your life! 


You only have one face to wear- so wear it well. ;)